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All organised, until I’m not.
This week I have been dealing with such complex issues as, what time is it really? am I sure I don’t have to go to work today? and, remember, when Saturday comes your holiday is over, it’s a work day....
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Weekly round-up.
Following the many postings of November it was my intention to take the weekend off from blogging and get ready for December. Then my youngest had a nasty seizure on Sunday evening while at respite and...
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Nourishing.
At school today she likely had a seizure. They rang home to tell me. I am so glad I made this lasagna this morning. I cooked early to avoid the time pressure of having to get it all together while she...
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Watching and caring.
Sitting tight, holding hands. Today is about watching and caring and praying that yesterday’s seizure is not repeated. Our plans for today changed. 15 stayed home from school, I stayed home from work....
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Trying to get her seizures back under control.
I could tell you about the headache, the constant pressure at the front of my head. I could tell you about the heaviness that sits palpably on my shoulders. I could tell you about the ever-present...
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Seeking the quiet.
It has been a weekend of health concerns. Sometimes there really isn’t much you want to say about it, instead there is the comfort of the familiar. The fact that a young dog loves to lie in the...
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There and back again.
For months respite has been sketchy, demands on resources by children in crisis, small bouts of illness for 15, have lead to a long gap since the last visit. This time there were no hindrances. Bags...
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A ‘phonecall, a hospital visit.
An early morning telephone call, a drive to the hospital. Worry and fear constant companions. The overwhelming flood of relief that she is well. The seizure during respite severe but not damaging....
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Gentle moments of today.
Her happy smile when I admire her plait when she returns from school. Knowing that she had some fun and some gentle tending there today after her stint in hospital. The joy I feel in her presence,...
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Not as still as she seems.
The image belies the truth. The quiet relaxation of the pose hides the rising tide of erratic behaviour we has hoped long past. Days when we could leave her for a while with her grandparents or allow...
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