I could tell you about the headache, the constant pressure at the front of my head. I could tell you about the heaviness that sits palpably on my shoulders. I could tell you about the ever-present sense of dread. Some of you would accept those. Others would roll their eyes.
I could tell you about the almost 15 years of experience that says that once it happens it keeps on happening until the correct intervention is found. More of you would accept that. That’s evidence based.
It doesn’t really matter because both are the truth. Both are my truth.
When she was nine months old and had her first seizure I had no warning, after that I did. I would have a build up of queasiness and pressure in my head until another seizure happened, then the feeling would pass until a day or two before the next occurrence.
And so it continued.
Last Wednesday 15 had a seizure at school. I kept her home with me on Thursday while she regained her usual health and disposition. Over the weekend all has been well except that this morning I almost kept her home.
This lunchtime school rang to say she had several more small seizures.
I feel no sense that this is over, instead I am sure there will be more until something is done to settle the situation. So I await a call back from her consultant.
After over two seizure free years this January has seen a return to something I had hoped was behind us. So we return to working out medication balances and getting 15 restored to full health.
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